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 Lyme Disease  / Untreated or Unresolved Chronic Lyme Disease
 

Some can be sick for years thinking it is just an exposure to toxic mold but it can be more than that.  It can be hidden "Lyme" disease

Some cannot figure out why after 3 years of removing themselves from the moldy home and detoxing they are not getting better and for some strange reason symptoms may start to shift.

We suggest seeing either an  LLMD doctor which is a Lyme Literate MD who can run an ISAGENIX (Western Blot) test.    These practitioners will suggest you get tested for Lyme Disease.  (Unfortunately Lyme testing is NEVER accurate but if bands DO show up then you know for sure that you do have Lyme present in your system)

You won't get the right treatment from doctors regarding a late stage lyme diagnosis because they treat ALL Lyme the same and somehow are not recognizing different treatments for different stages and don't know how to treat Chronic Lyme differently. (Most doctors say Chronic Lyme does not exist).

 If you just found the tick or just saw the rash or are exhibiting Stage 1 symptoms…antibiotics may be an option, (I strongly believe antibiotics are dangerous) but if you DON’T see either the tick or the rash or these early symptoms…you more than likely have chronic Lyme which has embedded itself into the soft tissues of your body.  Antibiotics have not seemed to be able to cure many people in late stages or honestly anyone at all...they just might feel better but still test positive for Lyme Disease.  The lyme spirochete is naturally resistant to antibiotics and most likely the doctors with give you doxycycline or some other antibiotic for months and that will only make you worse….and YOU MAY NOT GET BETTER.

We've had a few people who have beatan Lyme give some VERY good advice.  These are people that are living productive lives after having been diagnosed with late stage or chronic lyme disease. 

It was only natural that we listened to them and took notes and did our research so that what they did could be repeated and do what they do to get your everyday back and live a productive life instead of the life you've been living: Bed ridden, delirious, brain fog, chronic weakness, no friends, no social life and much more.

Here are some Hollistic - Chronic Lyme Protocols Given to us by readers who no longer suffer from Lyme Symptoms.

Symptoms – If you are not sure if you have Lyme or symptoms of late stage Lyme this website is an excellent source for a list of symptoms. http://www.angelfire.com/me2/StarShar/Herx1.html

Testing

  1. Western Blot Test: (READING YOUR TEST)  http://www.IGENEX.com
     

GO HERE for a great description on how to read the western blot test: http://lymetwistontherocks.blogspot.com/2011/01/western-blots-what-do-all-of-those-darn.html

IgM versus IgG is usually interpreted this way: if you have a positive IgM Western Blot, but negative IgG, it may mean that you just became infected fairly recently, because the IgM reaction to infection generally happens before the IgG.  If you have a positive IgG it may mean an established, chronic infection.
 

  1. IGM (activity) – means current or new tick infection (Antibiotic treatment has been seen to be very effective ONLY if you have an early stage case).
     
  2. IGG (activity) - means most likely you have had it for many months - possibly years. This is usually considered Stage 2 or Stage 3 or also known as “Chronic Lyme Disease”.  Chronic Lyme disease has been shown to NOT be responsive to antibiotic treatment.  Spirochetes have been left in the system too long and have hidden themselves away deep into tissues that antibiotics cannot reach or they have changed form in one way or another and have become antibiotic resistant bacteria.
     
  1. Candida Testing
    1. Tongue test – If tongue is whitish you have Candida
    2. Spit Test – Not necessarily an accurate test for Candida as it can be signs of many other things including ingesting dairy products.
    3. Antibodies testing
      1. Treatment for Candida
        1. Candida needs to be addressed for 30 days PRIOR to starting any Lyme treatment.
          1. Candida Diet for 30 days – no sugars, no carbs, no grains, no starch or starchy vegetables.
          2. Olive Leaf Extract – 900mg daily for 30 days
             
  2. Parasite Cleansing – Parasites can prevent you from detoxing and healing from Chronic Lyme.  Parasite testing in the US is NOT accurate.  According to Dr. Klinghardt (World renown Lyme specialist), “In order for parasites to be detected in the stool..the stool must be collected and tested within 4 hours after elimination…anything after that changes form”. http://www.parasitecleanse.com/STRCLNSE.HTM

 

 

Treatment? or Cure?

The Mold/Lyme Disease connection

One disease that is very common among those exposed to toxic mold is "Lyme Disease".

  1. What exactly is Lyme Disease?
  2. What are the symptoms?
    • Head, Face, Neck

    • Unexplained hair loss
    • Headache, mild or severe, seizures
    • Pressure in head, white matter lesions in brain (MRI)
    • Twitching of facial or other muscles
    • Facial paralysis (Bell’s Palsy, Horner’s syndrome)
    • Tingling of nose, (tip of) tongue, cheek or facial flushing
    • Stiff or painful neck
    • Jaw pain or stiffness
    • Dental problems
    • 10. Sore throat, clearing throat a lot, phlegm (flem), hoarseness, runny nose
    • Eyes/Vision

    • Double or blurry vision
    • Increased floating spots
    • Pain in eyes, or swelling around eyes
    • Oversensitivity to light
    • Flashing lights, peripheral waves or phantom images in corner of eyes
    • Ears/Hearing

    • Decreased hearing in one or both ears, plugged ears
    • Buzzing in ears
    • Pain in ears, oversensitivity to sounds
    • Ringing in one or both ears
    • Digestive and Excretory Systems

    • Diarrhea
    • Constipation
    • Irritable bladder (trouble starting, stopping) or interstitial cystitis
    • Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)
    • Musculoskeletal System

    • Bone pain, joint pain or swelling, carpal tunnel syndrome
    • Stiffness of joints, back, neck, tennis elbow
    • Muscle pain or cramps, (Fibromyalgia)
    • Respiratory and Circulatory Systems

    • Shortness of breath, can’t get full/satisfying breath, cough
    • Chest pain or rib soreness
    • Night sweats or unexplained chills
    • Heart palpitations or extra beats
    • Endocarditis, heart blockage
    • Neurologic System

    • Tremors or unexplained shaking
    • Burning or stabbing sensations in the body
    • Fatigue, Chronic Fatigue Syndrome, weakness, peripheral neuropathy or partial paralysis
    • Pressure in the head
    • Numbness in body, tingling, pinpricks
    • Poor balance, dizziness, difficulty walking
    • Increased motion sickness
    • Light-headedness, wooziness
    • Psychological Well-being

    • Mood swings, irritability, bi-polar disorder
    • Unusual depression
    • Disorientation (getting or feeling lost)
    • Feeling as if you are losing your mind
    • Over-emotional reactions, crying easily
    • Too much sleep, or insomnia
    • Difficulty falling or staying asleep
    • Narcolepsy, sleep apnea
    • Panic attacks, anxiety
    • Mental Capability

    • Memory loss (short or long term)
    • Confusion, difficulty thinking
    • Difficulty with concentration or reading
    • Going to the wrong place
    • Speech difficulty (slurred or slow)
    • Difficulty finding commonly used words
    • Stammering speech
    • Forgetting how to perform simple tasks
    • Reproduction and Sexuality

    • Loss of sex drive
    • Sexual dysfunction
    • Unexplained menstrual pain, irregularity
    • Unexplained breast pain, discharge
    • Testicular or pelvic pain
    • General Well-being

    • Phantom smells
    • Unexplained weight gain or loss
    • Extreme fatigue
    • Swollen glands or lymph nodes
    • Unexplained fevers (high or low grade)
    • Continual infections (sinus, kidney, eye, etc.)
    • Symptoms seem to change, come and go
    • Pain migrates (moves) to different body parts
    • Early on, experienced a “flu-like” illness, after which you have not since felt well
    • Low body temperature
    • Allergies or chemical sensitivities
    • Increased effect from alcohol and possible worse hangover
  3. How is Lyme relevant to toxic mold exposure? http://www.gordonmedical.com/unravelling-complex-chronic-illness/a-fng-part-two-chronic-mold-infections-and-lyme-disease/
  4. How do you test for it and.....most importantly
  5. What can you do about it?
Doctors that might help
How to Interpret Your Western Blot Test (IGENEX)

Western Blot Bands description (note: cross-reactive means it could indicate other spirochetes, specific means it ONLY happens when Lyme disease is present.  Borrellia or Bb is Lyme disease.):
18 p18 flagellin fragment
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb

28 outer surface protein D (OspD); Oms28; specific for Bb 
30 OspA substrate binding protein; common in European and one California strain

31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb

35 specific for Bb
37 specific for Bb

38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection
45 cross-reactive for all Borellia (sometimes people with Lyme who have this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients 


The numbers are actually the molecular weights in kilo-Daltons (kDa).  I've highlighted the antibodies in red which (many people agree) are very specific for Lyme disease.

IgM versus IgG is usually interpreted this way: if you have a positive IgM Western Blot, but negative IgG, it may mean that you just became infected fairly recently, because the IgM reaction to infection generally happens before the IgG.  If you have a positive IgG it may mean an established, chronic infection.

Thank you to: http://lymetwistontherocks.blogspot.com/2011/01/western-blots-what-do-all-of-those-darn.html for this excellent source


Why Chronic Lyme Treatment often fails

Heather's Story of How She Cured Lyme Naturally

Natural Herb Lyme Suggestions

Lyme-killing plants: Herbs like samento, banderol, andrographis, Japanese knotweed/resveratrol, smilax, cat's claw, Cumanda (see below) and Stephania all target Lyme and related tick-borne infections. Talk to a doctor knowledgeable in integrative medicine or Natural medicine for more info on taking these herbs.

Great article on 3 herbs to stop biofilms in Lyme: (this is not medical advice, please seek the assistance of a Chinese medicine doctor before taking any "herbs" as they can be dangerous if not taken under their supervision) http://goodbyelyme.com/free_articles/biofilm/nitric_oxide_herbs

Cumanda
Here is some info from herbalremedies.com:

Known medicinal properties include:

ANTIBACTERIAL

ANTIFUNGAL

ANTIVIRAL

ANTIPARASITIC

ANTI-INFLAMMATORY

ANALGESIC

IMMUNE SYSTEM MODULATOR

An Antibiotic:

Cumanda is very effective in treating the Borrelia burgdorferi bacteria, and practitioners are now using it in conjunction with Samento to treat Lyme borrelisosis. Lyme borreliosis has been linked to hundreds of medical conditions; many researchers and physicians believe that Lyme borreliosis may be a factor in most chronic conditions.

An Antifungal:

One of the most impressive benefits of Cumanda is its antifungal action. Physicians report that it is effective in treating many difficult to treat fungi including Mycosis fungoides, Candida krusei, Candida albicans and Aspergillus niger, to name a few.

An Anti-inflammatory:

In May 2005, pharmacological studies were conducted in laboratory rodents at the University of Guayaquil in Ecuador. In an anti-inflammatory effect study the Nutramedix Cumanda inhibited inflammation by 97%. It was compared with Pfizer's best selling and very toxic anti-inflammatory drug, Feldene (PIROXICAM), which inhibited inflammation by 98%.

Saftey & Interaction Information:

There are no known contraindications, no known side effects and no known interactions with other drugs when using Campsiandra angustifolia products like Cumanda. In May 2005, toxicology studies were conducted on Nutramedix Cumanda at the University of Guayaquil, Ecuador. No toxic effects were reported even when laboratory rodents received 240,000 times the equivalent human dose.

Antibiotic Resistance & Lyme Bacteria

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